Association for Multiple Endocrine Neoplasia Disorders (AMEND)
A UK registered charity since 2003, AMEND is a patient group providing information and support to anyone affected by multiple endocrine neoplasia disorders and associated endocrine tumours and syndromes. Run entirely on a voluntary basis by patients for patients, AMEND provides worldwide email and telephone support, runs a Research Registry and produces patient information with the help of an international expert medical advisory team. Further information on resources and free membership can found on the website as above.
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