Ehlers-Danlos Support UK
A Registered Charity that supports people who suffer from Ehlers-Danlos Syndrome (EDS).
Aims: To provide education, information and research. To help, encourage and inform those with EDS; as well as family members, medical and caring professions. To heighten awareness and support among medical professionals concerning EDS and encourage research into EDS.
Activities: Organises a biennial conference and a Regional Day on alternate years. Links members with each other for mutual support and exchange of ideas. Maintains a list of specialists who have a particular interest in and experience of EDS.
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.