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Ehlers-Danlos Support UK

Address: P.O. Box 748 Borehamwood WD6 9HU
Tel: 0208 736 5604
Description:

A Registered Charity that supports people who suffer from Ehlers-Danlos Syndrome (EDS).

Aims: To provide education, information and research. To help, encourage and inform those with EDS; as well as family members, medical and caring professions. To heighten awareness and support among medical professionals concerning EDS and encourage research into EDS.

Activities: Organises a biennial conference and a Regional Day on alternate years. Links members with each other for mutual support and exchange of ideas. Maintains a list of specialists who have a particular interest in and experience of EDS.

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