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Haemophilia Society

Address: Willcox House, 140 – 148 Borough High Street London, SE1 1LB
Tel: 0207 939 0780
Description:

Only national patient organisation for people with haemophilia and related bleeding disorders in the UK.

Aims:

  • To secure the best possible care, treatment and support for people with haemophilia and related bleeding disorders and their families.
  • To work for people with haemophilia, von Willebrand's or a related bleeding disorder and their families.

Activities:

  • A telephone and e-mail helpline.
  • Dedicated website with up-to-date information, downloads and discussion forums.
  • Publications, short films, booklets and other resources for affected people, their families and carers and for healthcare professionals.
  • Events and holidays.
  • Outreach and local support groups throughout the UK.
  • Small grants through the Tanner Fund.
  • Advocacy and campaigning.
  • Specialist information for:
  • Inhibitors
  • Women affected by bleeding disorders
  • Children, young people and families
  • Older people with bleeding disorders and those affected by mobility or pain issues, or blood-borne viruses.

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Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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