Text Size:

Hughes Syndrome Foundation

Address: Conybeare House Guy's Hospital London SE1 9RT
Tel: 020 7188 8217
Contact: Kate Hindle
Description:

Registered UK charity dedicated to promoting awareness and funding research into Hughes Syndrome which is also known medically as the antiphospholipid syndrome (APS).

Aims:

  • To support research into the condition.
  • To offer understanding and support to sufferers.
  • To offer information and education on Hughes Syndrome.
  • To raise funds to provide information, education and research.

Activities:

  • Produces a number of patient books and leaflets.
  • Provides three newsletters a year for members.
  • Website.
  • Constantly alerts various media sources about the condition.
  • Awareness month in May.
  • Holds patient and GP meetings.
  • Focuses on raising funds to further research into the causes and possible treatment for the antiphospholipid syndrome, and to raise public and medical awareness of the condition in the hope that they can prevent anyone suffering unnecessarily from its effects.

Membership:

£20.00 per annum (UK)

£25.00 per annum (elsewhere).

In return you will receive:

  • The book 'Hughes Syndrome: 'A Patient's Guide'
  • A 'Questions and Answers' paper of the most frequently asked questions and answers.
  • Three newsletters per year.
  • Local Support Group details.

Gold membership includes all the above plus a MediPAL ID card and costs £33 (£38 if you're outside the UK).

DIAL Disclaimer

Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

Located in: Listing
Go To Top