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Joubert Syndrome UK

Address: 50 Sheepwalk Lane Castleford W.Yorkshire WF10 3QG
Tel: 07530254743
Website: www.jsuk.org
Contact: Faith Douthwaite (Founder)
Referral: Telephone, e-mail, letter.
Description:

Eligibility: Parents, family, professionals dealing with Joubert Syndrome.

Cost: Free

Parent support group for families and carers of children affected by Joubert Syndrome, a rare genetic disorder. Also welcomes families with related cerebellar disorders including Meckel-Gruber Syndrome.

Activities:

  • Distribution of medical information.
  • Raises awareness of Jobert Syndrome.
  • Informal get-togethers.

DIAL Disclaimer

Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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