Joubert Syndrome UK
Eligibility: Parents, family, professionals dealing with Joubert Syndrome.
Parent support group for families and carers of children affected by Joubert Syndrome, a rare genetic disorder. Also welcomes families with related cerebellar disorders including Meckel-Gruber Syndrome.
- Distribution of medical information.
- Raises awareness of Jobert Syndrome.
- Informal get-togethers.
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.