Marfan Association UK
Support group for people with Marfan Syndrome and their families.
Aims: To provide support, education and research for people with Marfan Syndrome and their families.
- Gives support to sufferers and their families.
- Runs a telephone helpline.
- Supports research into cause and treatment of the syndrome.
- Supplies information and educational materials to medical professionals and educational bodies.
Local Groups: 72 support points throughout the UK and Eire.
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