Marfan Association UK

Support group for people with Marfan Syndrome and their families.

Aims: To provide support, education and research for people with Marfan Syndrome and their families.

Activities:

• Gives support to sufferers and their families.
• Runs a telephone helpline.
• Supports research into cause and treatment of the syndrome.
• Supplies information and educational materials to medical professionals and educational bodies.

Local Groups: 72 support points throughout the UK and Eire.

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