Marfan Association UK
Address: Rochester House
5 Aldershot Road
Fleet
Hampshire
GU51 3NG
Tel: 01252 810 472
Fax: 01252 810 473
Website:
www.marfan-association.org.uk
Description:
Support group for people with Marfan Syndrome and their families.
Aims: To provide support, education and research for people with Marfan Syndrome and their families.
Activities:
- Gives support to sufferers and their families.
- Runs a telephone helpline.
- Supports research into cause and treatment of the syndrome.
- Supplies information and educational materials to medical professionals and educational bodies.
Local Groups: 72 support points throughout the UK and Eire.
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