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Multiple System Atrophy Trust

Address: 51 St Olav’s Court City Business Centre Lower Road London SE16 2XB
Tel: 0333 323 4591 Mon to Fri 9 till 5
Description:

The Multiple System Atrophy Trust was founded in 1997 and is the UK's only support and information for people living with Multiple System Atrophy, their families and carers.

Multiple System Atrophy (MSA) is a progressive neurological disorder that affects adult men and women. It is caused by degeneration or atrophy of nerve cells in several (or multiple) areas of the brain which can result in problems with movement, balance and automatic functions of the body such as bladder and blood pressure control.

The MSA Trust exists to improve understanding of MSA and increase the quality of life of those people living with it. Its aims are:

  • To provide information and support to people living with MSA, their families and the health professionals involved in their care
  • To raise awareness of the condition and its treatment, especially among healthcare professionals
  • Promoting and sponsoring research into the causes, diagnosis and treatment of MSA

The MSA Trust provides information and support and helps to reduce the isolating effects of MSA through its activities, including:

  • A nurse specialist helpline offering advice and support by telephone and email.
  • Information Standard certified factsheets covering sympton management and advice on living with MSA
  • Teaching and awareness sessions for health and care professionals
  • A comprehensive website and member forum
  • A growing database of local support services called the MSA Local Hub
  • A regular magazine, MSA News, offering further advice and support

 

 

 

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