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National Society for Phenylketonuria

Address: NSPKU PO Box 3143 Purley CR8 9DD
Tel: 030 3040 1090 (helpline)
Fax: 0845 004 8341
Website: www.nspku.org

Support group for parents whose child has PKU.


  • Provides the opportunity for parents to meet and share their experiences.
  • Distribute information.
  • Promotes the educational, medical and social welfare of persons with PKU.
  • Promotes and encourages Regional Support Groups around the country.

Membership: Contact organisation for current membership fees.

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