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Neuropathy Trust

Address: PO Box 26 Nantwich Cheshire CW5 5FP
Tel: 01270 611828
Fax: 01270 611 828
Description:

The Neuropathy Trust is a registered charity, which was established to provide information and support to people affected by peripheral neuropathy and neuropathic pain. The Neuropathy Trust is a voluntary, non-profit making organisation and has members from many different countries, working together towards one goal, improving the current situation for people affected by these neuropathic conditions.

Aims:

  • To ensure that patients, family and carers receive support, information and communication.
  • To provide a lifeline to sufferers of Peripheral Neuropathy (PN) and Neuropathic Pain (NeP).
  • To ensure, irrespective of the cause of the peripheral neuropathy or neuropathic pain (whether known or otherwise) that patients, family, carers and healthcare providers receive the highest possible level of information and support.

Activities:

  • Participates in national and international awareness, education, research and information exchange.
  • Improves medical education and understanding regarding peripheral neuropathy and neuropathic pain in primary and secondary care.
  • Provides support, educational information and means of communication to people affected by Peripheral Neuropathy and Neuropathic Pan, thus hopefully improving their overall quality of life.
  • Helps to highlight the importance of early recognition and, where necessary, subsequent referral to the appropriate specialists department.
  • Provides a forum fro healthcare workers of all groups to pool their resources in promotion of good quality care for all patients with neuropathy and neuropathic pain. Its aims are to raise the profile of Neuropathy and Neuropathic Pain so that more doctors, nurses, physiotherapists, occupational therapists and other healthcare workers will seek to make this their special area of interest.
  • Encourages research into the causes and treatments of peripheral neuropathy and neuropathic pain and raises awareness amongst the general public and politicians of the need for special accommodation and facilities for people affected by these diseases.
  • Believes that patients have a right to be informed about all available treatment options in relation to the management of their disease including, for example, being told of the potential side effects/risk factors; so that they are in a position to make educated and informed choices.
  • Believes that patients should have equal access to good quality health care in relation to the management of their disease.
  • Believes that patients have a right to have their illness explained to them in clear language. This is particularly important in long term neurological/neuropathic disorders where doctors do not necessarily have all the answers.

DIAL Disclaimer

Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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