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Prader Willi Syndrome Association (UK)

Address: PWSA UK Suite 4.4 Litchurch Plaza Litchurch Lane Derby DE24 8AA
Tel: 01332 365676
Website: www.pwsa.co.uk
Description:

Support organisation for families and carers of those with PWS.

Aims:

  • To promote the care, welfare, treatment, interest, education and advancement of persons suffering from the Prader-Willi Syndrome by any appropriate means.
  • To establish mutual help groups and to co-ordinate the activities of such groups.
  • To provide papers, periodicals, pamphlets and other information to further the aims of the Association.

Activities:

  • Contacts and supports families concerned with the disorder.
  • Informs health professionals, families and the public in general about the disorder.
  • Raises funds, invites and receives contributions by way of subscriptions, donations and otherwise.
  • Fosters and supports research into the causes and alleviations of the disorder.
  • Friendly telephone help and support.
  • In-house training.
  • Welfare benefits advice.
  • Reference library.
  • Access to medical experts on PWS.
  • Conferences and events.
  • A wide range of free leaflets on website.

Local Groups: In some areas. Call office for details.

Membership: By donation.

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Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes

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