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Primary Ciliary Dyskinesia Family Support Group

Contact: Fiona Copeland (Chairman)
Description:

Support group for people with Primary Ciliary Dyskinesia (PCD) and their families.

Aims: To provide support to patients with PCD and parents of children known to have the condition.

Activities:

  • Provides and up-to-date information service.
  • Raises money to promote research to aid diagnoses and treatment of children and adults with PCD.
  • Bringing PCD to the attention of the medical profession and the public.

Membership: No subscription, but donations welcome.

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