Primary Ciliary Dyskinesia Family Support Group
Support group for people with Primary Ciliary Dyskinesia (PCD) and their families.
Aims: To provide support to patients with PCD and parents of children known to have the condition.
- Provides and up-to-date information service.
- Raises money to promote research to aid diagnoses and treatment of children and adults with PCD.
- Bringing PCD to the attention of the medical profession and the public.
Membership: No subscription, but donations welcome.
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