Proteus Syndrome Foundation UK
Support group for families affected by Proteus Syndrome.
Aims: To support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome.
- Offers support to families by telephone, letter and e-mail and linking families where possible. The group currently helps over 50 families in the UK and Europe.
- Provides access to medical advisory panels in the UK and USA.
- Provides access to the library of medical articles on Proteus Syndrome.
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.