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Proteus Syndrome Foundation UK

Address: Tracey Whitewood-Neal 104a Manor Road Hastings East Sussex TN34 3LP UK

Support group for families affected by Proteus Syndrome.

Aims: To support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome.


  • Offers support to families by telephone, letter and e-mail and linking families where possible. The group currently helps over 50 families in the UK and Europe.
  • Provides access to medical advisory panels in the UK and USA.
  • Provides access to the library of medical articles on Proteus Syndrome.

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