Tourettes Action is the UK's leading support and research charity for people with Tourette Syndrome (TS) and their families. TS is a neurological condition of unknown origin affecting one child in a hundred. For about half of children with TS, the condition continues into adulthood.
Aims/Activities: We want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. We deal with all forms of TS including the most challenging.
- We know how important it can be to have someone to talk to. If you have any questions or concerns about TS, or if you just want to speak to someone who understands the issues surrounding TS, our Helpline is available 9am-5pm, Monday to Friday
- Our website provides free information on TS, relevant books, our events and other organisations who can help
- We have an online Forum where people can talk about TS, ask questions and find support and understanding
- We can send free information packs to anyone who would like to know more about TS.
- We offer grants for purchases that help improve the lives of people with TS
- We keep a list of doctors in the UK who we know to be familiar with TS. Contact us to request your free copy
- We hold conferences each year, providing fantastic speakers, interactive sessions and an opportunity for families and individuals to meet others affected by TS
- We send a free monthly enewsletter packed with information on TS, coping strategies, research, supporter's news, fundraising ideas and details of our events, including our popular conferences
- We can put you in contact with your nearest support group or with other members in your area and/or members with similar experience
- We can produce high quality Photo ID cards for those diagnosed with TS. The cards feature information about TS and come with a pack of TS info cards that can be handed out
Fundraising donations help to:
- Run groups and events to reduce isolation and help people affected by TS share their experiences with others
- Produce more information on managing TS in different situations, and to help professionals support people with TS effectively and with understanding
- Continue our Helpline, first port of call for many newly diagnosed people, anxious parents and family members and offer many other services which are not available elsewhere
Membership: Membership is open to everyone with an interest in Tourette Syndrome (TS).
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.