UK Thalassaemia Society
Thalassaemia is an inherited condition of the blood in which patients are unable to manufacture haemoglobin, the oxygen-carrying component of red blood cells. Lifelong medical intervention is necessary for survival in the form of blood transfusions (typically every 3-4 weeks) from babyhood onwards. The patients also need daily medication and constant monitoring tests. Common complications of thalassaemia include; diabetes, osteoporosis, problems with development and fertility, liver and cardiac disorders. Anyone can be a carrier of thalassaemia, although it is most commonly found in the Mediterranean, Asian, Middle Eastern and South East Asian communities. If a man and woman who are both carriers have children together, every time they have a child there is a 25% possibility that the baby will be born with thalassaemia. Carriers are completely healthy and display no symptoms; but can be identified by a simple blood test. The UK Thalassaemia Society exists to provide information, counselling and support to all those affected by thalassaemia and the health care professionals who work with them.
- For the relief of persons suffering from Thalassaemia.
- To educate people on the problems of Thalassaemia. This includes lectures with the aid if slides and/or video films in order to explain it in simple language to any group of people who wish to learn about it.
- To offer counselling to sufferers and carriers.
- Promotion and co-ordination of research in connection with Thalassaemia.
- Offers counselling to sufferers and carriers.
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.