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UK Thalassaemia Society

Address: 19 The Broadway, Southgate Circus, London, N14 6PH
Tel: 020 8882 0011
Website: www.ukts.org
Description:

Thalassaemia is an inherited condition of the blood in which patients are unable to manufacture haemoglobin, the oxygen-carrying component of red blood cells. Lifelong medical intervention is necessary for survival in the form of blood transfusions (typically every 3-4 weeks) from babyhood onwards. The patients also need daily medication and constant monitoring tests. Common complications of thalassaemia include; diabetes, osteoporosis, problems with development and fertility, liver and cardiac disorders. Anyone can be a carrier of thalassaemia, although it is most commonly found in the Mediterranean, Asian, Middle Eastern and South East Asian communities. If a man and woman who are both carriers have children together, every time they have a child there is a 25% possibility that the baby will be born with thalassaemia. Carriers are completely healthy and display no symptoms; but can be identified by a simple blood test. The UK Thalassaemia Society exists to provide information, counselling and support to all those affected by thalassaemia and the health care professionals who work with them.

Aims:

  • For the relief of persons suffering from Thalassaemia.
  • To educate people on the problems of Thalassaemia. This includes lectures with the aid if slides and/or video films in order to explain it in simple language to any group of people who wish to learn about it.
  • To offer counselling to sufferers and carriers.

Activities:

  • Promotion and co-ordination of research in connection with Thalassaemia.
  • Offers counselling to sufferers and carriers.

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