Unique - Understanding Chromosome Disorders
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of the group is free but the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.
Unique, offers contact with families with an affected members who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders. A network of local contacts promote awareness of rare chromosome disorders. Unique co-ordinates families to assist in research and has password-protected discussion forums for registered members, it also has social networking sites on Facebook, Twitter etc. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 13,000 affected families and many relevant professionals as members worldwide in over 100 countries.
Individually these chromosome disorders are rare but collectively they are common. It is believed that more than one in every 200 babies is born with a rare chromosome disorder, with more than one in every 1,000 babies having symptoms from birth or early childhood, the rest being affected when they grow up and try to have babies of their own.
Membership: Membership is currently free.
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.