1 Blackthorn Avenue
Southborough
Tunbridge Wells
Kent
TN4 9YA

Tel: 01633 718 415
E-mail: chris.humphreys4@ntlworld.com
Website: www.lmbbs.org.uk

Description:
Supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers.

Aims:
To raise awareness and knowledge of the condition.

Activities:

• Support by phone and letter.
• Contact with other families.
• Advice, information and support.
• Contact point for parents and professionals.
• Annual family conference providing personal contact with others.
• Fundraising.
• Co-operates with research relevant to the syndrome.
• Pass on advice to assist with day-to-day care of children.
• Advising about benefit entitlement.
• Providing information which will help professionals in medical and educational fields to understand more about the condition.
• Information available on CD & Braille.

Local Groups:
Represents over 200 families. Also has regional groups in Scotland, Wales and Ireland.

Membership:
No membership fees, but donations are welcomed.

Updated 28/09/07

DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press,
DIAL Doncaster cannot be held responsible for any subsequent changes.

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