Neurosupport Centre
Norton Street
Liverpool
L3 8LR

Tel: 0151 298 3298
Fax: 0151 298 9440
E-mail: info@hda.org.uk
Website: www.hda.org.uk

Description:
Support group for anyone with Huntingtons Disease, their families and carers.

Aims:

• To support families affected by Huntingtons Disease.
• To promote research, relief and treatment.
• To disseminate knowledge about the disease.
• To provide information, comfort and support (including financial support where appropriate) to families and their associated professionals.

Activities:

• Provides information and advice to families, friends and health care professionals whose task it is to support Huntingtons Disease families in the UK.
• Research programme, which promotes and funds both medical and social research.
• Operates a Central Care Information, Advice and Support Service.

Also operates a Regional Care Advisory Service, these consist of teams of Regional Care Advisers who:

• Provide information and advice to families.
• Answer crisis calls and liaise with other professional service providers.
• Promote and develop a full range of local services.
• Identify suitable respite and residential care facilities.
• Liaise with local branches and self-help groups.
• Give talks and organise seminars and training days.
• Provide speakers for training sessions.
• Provide workshops for service providers and users such as health, social services, nursing homes and residential care staff teams.

Local Groups:
Informal local groups where families mix socially, provide mutual support and form local links with professionals and other groups in the community.

Membership:
Membership is free.

updated 12/09/08

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Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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