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DIAL Doncaster, Unit 9, Shaw Wood Business Park, Shaw Wood Way, Doncaster, DN2 5TB
Alstrom Syndrome UK

49 Southfield Avenue
Paignton
Devon
TQ3 1LH

Helpline: 01803 524 238
Fax: 01803 524 238
E-mail: info@alstrom.org.uk
Website: www.alstrom.org.uk

Description:
Support group for those affected with Alstrom Syndrome.

Aims:

  • To alleviate suffering of those with Alstrom Syndrome.
  • To provide support for them, their carers and the professionals who are working with them.

Activities:

  • Providing information, resources and support to individuals affected by Alstrom Syndrome, family members and healthcare professionals.
  • Raising awareness amongst both the public and medical professions of Alstrom Syndrome.
  • Looking to provide a trust so that affected individuals can purchase any necessary equipment they may need.
  • The also hope to be able to provide help with accommodation should hospital treatment be necessary away from the sufferer's home.
  • Fund-raising for medical research.
  • Fund-raising for individuals needs.
  • Co-ordinates an annual screening clinic alongside its annual conferences.

updated 23/11/07

DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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