27 Crosby Row
London
SE1 3YD
Helpline: 0845 223 4424
Tel: 020 7089 6220
Fax: 020 7089 6201
E-mail: info@hepctrustorg.uk
E-mail: helpline@hepctrust.org.uk (e-mail helpline)
Website: www.hepctrust.org.uk
Description:
A group of people with Hepatitis C trying to help other people who are affected by Hepatitis C.
Aims:
- To help those with Hepatitis C, primarily by providing them with both information and support.
- To raise public awareness of the disease. Half a million people in the UK have Hepatitis C, but 9 out of 10 people who have it, still don't know.
- To campaign for a sensible and vigorous government response to this epidemic.
- To initiate research into the many areas of Hepatitis C that continue to be poorly understood.
Activities:
- Runs a range of services that provide support, information and representation for people with Hepatitis.
- Are also committed to raising awareness by working to highlight the advantages of getting tested.
- Informing the general public about the truths of Hepatitis C to reduce misconceptions and promote support and understanding around the subject.
- The Trust operates their website which is dedicated to being the most authoritative and up-to-date information resource on Hepatitis C in the UK.
- The Trust is conducting a major nationwide survey of people with Hepatitis C, focusing particularly on their experience of different forms of treatment, both conventional and alternative.
- The Trust has provided training for Hepatitis Nurses to help them offer improved support for patients undergoing the often difficult Hepatitis C treatment currently available. They are also developing Hepatitis C training for Drug Action Teams.
- The Trust is a member of The Telephone Helplines Association manned by volunteers who themselves have Hepatitis C (or who had it and cleared).
- The Trust has created and is running a new self-management course specifically for those with Hepatitis C for whom treatment is not available or has not worked.
- The Trust is in regular contact with MP's and continues to lobby the Government for a more robust response to Hepatitis C. It also holds the secretariat of All Party Parliamentary Group on Heptology.
updated 10/04/08
DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.
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