DEBRA House
13 Wellington Business Park
Dukes Ride
Crowthorne
Berkshire
RG45 6LS

Tel: 01344 771 961
Fax: 01344 762 661
E-mail: debra@debra.org.uk
Website: www.debra.org.uk

Description:
Support group for people affected by Epidermolysis Bullosa.

Aims:
To stimulate knowledge of, and interest in, EB for the benefit of those with the condition and their families and to fund medical research into EB.

Activities:

• Leading the world in identifying and funding specific research projects likely to lead to a cure and successful treatments for EB.
• Establishing specialist treatment centres.
• Providing a dedicated EB healthcare team of children's and adult nurses, a dietician, welfare support and social workers to pioneer improvements in care, that have led, amongst other things, to children with RDEB no longer being frail, underweight and malnourished.
• Enabling prenatal diagnosis to be made at a much earlier stage.
• Making skilled counselling and expert guidance on current legislation and governmental services available to EB families, to improve their quality of life.
• Raising awareness of the issues surrounding EB to the general public, healthcare professionals, schools and other interested bodies.

Membership:
Membership is free.

Updated 19/06/07

DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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