8 Caldecoat Gardens
Bushey Heath
Hertfordshire
WD23 4GP
Helpline: 0121 604 3309
Helpline: 020 7819 1801 - Via the Muscular Dystrophy Campaign.
Fax: 020 8950 7300
E-mail: fshgroup@hotmail.com
Website: www.fsh-group.org
Description:
Support and encouragement to families and individuals with FSH.
The FSH Support group can also be contacted via the Muscular Dystrophy Campaign.
Aims:
To improve the quality of life for all those with Facio Scapulo Humeral (FSH) and those who care for them.
Activities:
- Offering support and encouragement to families and individuals who have FSH.
- Being a point of contact to those newly diagnosed.
- Being a source of information for people with FSH.
- Put people with FSH in contact with each other.
- Hold a conference every year, involving demonstrations, guest speakers and discussions.
Membership:
There is no charge for membership, but donations are gratefully accepted.
updated 15/05/06
DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.
Return to National Support Organisations starting with F