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DIAL Doncaster, Unit 9, Shaw Wood Business Park, Shaw Wood Way, Doncaster, DN2 5TB
Prader Willi Syndrome Association (UK)

125a London Road
Derby
Derbyshire
DE1 2QQ

Tel: 01322 365 676 (9:30 am - 3:30 pm Monday to Friday, answerphone at other times)
Fax: 01332 360 401
E-mail: admin@pwsa.co.uk
Website: www.pwsa.co.uk

Description:
Support organisation for families and carers of those with PWS.

Aims:

  • To promote the care, welfare, treatment, interest, education and advancement of persons suffering from the Prader-Willi Syndrome by any appropriate means.
  • To establish mutual help groups and to co-ordinate the activities of such groups.
  • To provide papers, periodicals, pamphlets and other information to further the aims of the Association.

Activities:

  • Contacts and supports families concerned with the disorder.
  • Informs health professionals, families and the public in general about the disorder.
  • Raises funds, invites and receives contributions by way of subscriptions, donations and otherwise.
  • Fosters and supports research into the causes and alleviations of the disorder.
  • Friendly telephone help and support.
  • In-house training.
  • Welfare benefits advice.
  • Representation at case conferences and tribunals.
  • Advocacy for people with PWS.
  • Special holidays (members only).
  • Reference library.
  • Access to medical experts on PWS.
  • Conferences and events.
  • A wide range of free leaflets on website.

Local Groups:
In some areas. Call office for details.

Membership:
By donation.

updated 11/12/07

DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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