Rochester House
5 Aldershot Road
Fleet
Hampshire
GU51 3NG
Helpline: 01252 810 472
Fax: 01252 810 473
E-mail: marfan@tinyonline.co.uk
Website: www.marfan-association.org.uk
Description:
Support group for people with Marfan Syndrome and their families.
Aims:
To provide support, education and research for people with Marfan Syndrome and their families.
Activities:
- Gives support to sufferers and their families.
- Runs a telephone helpline.
- Supports research into cause and treatment of the syndrome.
- Supplies information and educational materials to medical professionals and educational bodies.
Local Groups:
72 support points throughout the UK and Eire.
updated 17/09/08
DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.
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