9 Tippett Close
White Stone
Nuneaton
Warwickshire
CV11 4SU
Tel: 02476 345 199
Fax: 02476 345 199
E-mail: enquiries@shwachman-diamondsupport.org
Website: www.shwachman-diamondsupport.org
Description:
Shwachman Diamond Support UK is a registered charity established to offer support and information to sufferers and their families. Shwachman Diamond Syndrome is an inherited condition that effects any organs in the body, including the bone marrow, the pancreas and the skeleton.
Aims:
- To offer information and support to sufferers and their families.
- To promote and fund research initiatives which are desperately needed to stop unnecessary deaths.
- To raise awareness of the syndrome and its implications among the medical profession, support agencies and the general public.
updated 16/05/08
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