17 Monkhill Mount
Pontefract
West Yorkshire
WF8 1JG

E-mail: faidid@aol.com
Website: www.jsuk.btik.com

Contact: Faith Douthwaite (Founder)
Eligibility: Parents, family, professionals dealing with Joubert Syndrome.
Referral: Telephone, e-mail, letter.
Cost: Free
Description:
Parent support group for families and carers of children affected by Joubert Syndrome, a rare genetic disorder. Also welcomes families with related cerebellar disorders including Meckel-Gruber Syndrome.

Activities:

• Distribution of medical information.
• Raises awareness of Jobert Syndrome.
• Informal get-togethers.

updated 20/05/08

DIAL Disclaimer
Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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