2 Watermill Close
Bexhill-on-sea
East Sussex
TN39 5EJ

Tel: 01424 736 640
E-mail: tracy.whitwoodneal@yahoo.co.uk
Website: www.proteus-syndrome.org.uk

Description:
Support group for families affected by Proteus Syndrome.

Aims:
To support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome.

Activities:

• Offers support to families by telephone, letter and e-mail and linking families where possible. The group currently helps over 50 families in the UK and Europe.
• Provides access to medical advisory panels in the UK and USA.
• Provides access to the library of medical articles on Proteus Syndrome.

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Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.