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UK Lowe Syndrome Trust

Address: 77 West Health Road, London, NW3 7TH
Tel: 020 7794 8858


Charity working for children and their families with Lowe Syndrome. The Lowe Syndrome Trust was formed as a Charity in June 2000 as an affiliate of the international Lowe Syndrome Association (USA).


  • to initiate interest and raise funding for medical research into Lowe Syndrome.
  • to provide support and encourage communication among families affected by Lowe Syndrome.
  • to provide medical and educational information.
  • to maximise the well being and potentials of individuals affected by Lowe Syndrome.
  • to support and encourage research.
  • to offer mutual support to affected families.
  • to raise public awareness.


  • international conferences combined with medical workshops.
  • liaison with other organisations.
  • holds occasional seminars.
  • medical research grants.




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Whilst all the information given in this document was correct at the time of going to press, DIAL Doncaster cannot be held responsible for any subsequent changes.

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